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Rare Diseases Epidemiology

Overview of attention for book
Cover of 'Rare Diseases Epidemiology'

Table of Contents

  1. Altmetric Badge
    Book Overview
  2. Altmetric Badge
    Chapter 1 Rare Diseases – Avoiding Misperceptions and Establishing Realities: The Need for Reliable Epidemiological Data
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    Chapter 2 Rare Diseases Epidemiology Research
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    Chapter 3 Evidence-Based Medicine and Rare Diseases
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    Chapter 4 Prevention, Diagnosis and Services
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    Chapter 5 The Importance of Case Reports in Advancing Scientific Knowledge of Rare Diseases
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    Chapter 6 Patient registries: utility, validity and inference.
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    Chapter 7 Biobanking in Rare Disorders
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    Chapter 8 Evaluation of the validity and utility of genetic testing for rare diseases.
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    Chapter 9 Rare Diseases Epidemiology
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    Chapter 10 Statistical Methods for the Geographical Analysis of Rare Diseases
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    Chapter 11 Clinical Trials and Rare Diseases
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    Chapter 12 A Regulatory Overview About Rare Diseases
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    Chapter 13 Rare Diseases Epidemiology
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    Chapter 14 Rare Diseases Social Epidemiology: Analysis of Inequalities
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    Chapter 15 Quality of Life and Rare Diseases
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    Chapter 16 Cost of illness and economic evaluation in rare diseases
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    Chapter 17 The Burden of Rare Cancers in Europe
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    Chapter 18 Hereditary Channelopathies in Neurology
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    Chapter 19 Osteochondral Diseases and Fibrodysplasia Ossificans Progressiva
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    Chapter 20 The Prevalence of Congenital Anomalies in Europe
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    Chapter 21 Rare Autoimmune Diseases
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    Chapter 22 Epidemiology of Rare Anaemias in Europe
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    Chapter 23 Inherited Metabolic Rare Disease
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    Chapter 24 Rare Diseases Epidemiology
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    Chapter 25 Creating a European Union Framework for Actions in the Field of Rare Diseases
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    Chapter 26 National Plans and Strategies on Rare Diseases in Europe
  28. Altmetric Badge
    Chapter 27 Ethical Aspects on Rare Diseases
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    Chapter 28 Advocacy Groups and Their Role in Rare Diseases Research
Overall attention for this book and its chapters
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (95th percentile)
  • High Attention Score compared to outputs of the same age and source (97th percentile)

Mentioned by

blogs
2 blogs
twitter
12 tweeters

Citations

dimensions_citation
28 Dimensions

Readers on

mendeley
185 Mendeley
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Title
Rare Diseases Epidemiology
Published by
Advances in experimental medicine and biology, January 2010
DOI 10.1007/978-90-481-9485-8
ISBNs
978-9-04-819484-1, 978-9-04-819485-8, 978-9-40-073338-1
Authors

Posada de la Paz, Manuel, Groft, Stephen C

Editors

Manuel Posada de la Paz, Stephen C. Groft

Twitter Demographics

The data shown below were collected from the profiles of 12 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 185 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United Kingdom 5 3%
United States 4 2%
Korea, Republic of 2 1%
Netherlands 1 <1%
Belgium 1 <1%
Canada 1 <1%
Unknown 171 92%

Demographic breakdown

Readers by professional status Count As %
Researcher 33 18%
Student > Master 31 17%
Student > Bachelor 25 14%
Student > Ph. D. Student 23 12%
Other 14 8%
Other 42 23%
Unknown 17 9%
Readers by discipline Count As %
Medicine and Dentistry 72 39%
Agricultural and Biological Sciences 21 11%
Biochemistry, Genetics and Molecular Biology 17 9%
Social Sciences 9 5%
Economics, Econometrics and Finance 6 3%
Other 37 20%
Unknown 23 12%

Attention Score in Context

This research output has an Altmetric Attention Score of 21. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 02 September 2021.
All research outputs
#1,535,354
of 22,880,230 outputs
Outputs from Advances in experimental medicine and biology
#191
of 4,951 outputs
Outputs of similar age
#7,164
of 164,160 outputs
Outputs of similar age from Advances in experimental medicine and biology
#2
of 88 outputs
Altmetric has tracked 22,880,230 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 93rd percentile: it's in the top 10% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 4,951 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 6.1. This one has done particularly well, scoring higher than 96% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 164,160 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 95% of its contemporaries.
We're also able to compare this research output to 88 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 97% of its contemporaries.