The Ethics of Medical Data Donation

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The Ethics of Medical Data Donation

Springer International Publishing

Table of Contents

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Book Overview
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Chapter 1 Ethical Medical Data Donation: A Pressing Issue
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Chapter 2 Data Donation: How to Resist the iLeviathan
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Chapter 3 Data Donations as Exercises of Sovereignty
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Chapter 4 The Ethics of Uncertainty for Data Subjects
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Chapter 5 Incongruities and Dilemmas in Data Donation: Juggling Our 1s and 0s
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Chapter 6 Posthumous Medical Data Donation: The Case for a Legal Framework
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Chapter 7 Medical Data Donation, Consent and the Public Interest After Death: A Gateway to Posthumous Data Use
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Chapter 8 The Personal Data Is Political
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Chapter 9 Personal Data Cooperatives – A New Data Governance Framework for Data Donations and Precision Health
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Chapter 10 Defining Data Donation After Death: Metadata, Families, Directives, Guardians and the Route to Big Consent
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Chapter 11 Enabling Posthumous Medical Data Donation: A Plea for the Ethical Utilisation of Personal Health Data
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Chapter 12 An Ethical Code for Posthumous Medical Data Donation

Attention for Chapter 12: An Ethical Code for Posthumous Medical Data Donation

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Participation in Data Donation: Co-Creative, Collaborative, and Contributory Engagements with Athletes and their Intimate Data

Conference proceeding (July 2024)

Sensitive Data Donation: A Feminist Reframing of Data Practices for Intimate Research Contexts

Conference proceeding (July 2024)

Griefbots, Deadbots, Postmortem Avatars: on Responsible Applications of Generative AI in the Digital Afterlife Industry

Article in Philosophy & Technology (May 2024)

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