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The Ethics of Medical Data Donation

Overview of attention for book
The Ethics of Medical Data Donation
Springer International Publishing

Table of Contents

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    Book Overview
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    Chapter 1 Ethical Medical Data Donation: A Pressing Issue
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    Chapter 2 Data Donation: How to Resist the iLeviathan
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    Chapter 3 Data Donations as Exercises of Sovereignty
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    Chapter 4 The Ethics of Uncertainty for Data Subjects
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    Chapter 5 Incongruities and Dilemmas in Data Donation: Juggling Our 1s and 0s
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    Chapter 6 Posthumous Medical Data Donation: The Case for a Legal Framework
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    Chapter 7 Medical Data Donation, Consent and the Public Interest After Death: A Gateway to Posthumous Data Use
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    Chapter 8 The Personal Data Is Political
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    Chapter 9 Personal Data Cooperatives – A New Data Governance Framework for Data Donations and Precision Health
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    Chapter 10 Defining Data Donation After Death: Metadata, Families, Directives, Guardians and the Route to Big Consent
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    Chapter 11 Enabling Posthumous Medical Data Donation: A Plea for the Ethical Utilisation of Personal Health Data
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    Chapter 12 An Ethical Code for Posthumous Medical Data Donation
Attention for Chapter 9: Personal Data Cooperatives – A New Data Governance Framework for Data Donations and Precision Health
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  • In the top 25% of all research outputs scored by Altmetric
  • Good Attention Score compared to outputs of the same age (73rd percentile)

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Summary Policy documents
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Cited by Flemish Advisory Council for Innovation and Enterprise (VARIO) on

The Flemish Advisory Council for Innovation and Enterprise (Vlaamse Adviesraad voor Innoveren en Ondernemen or VARIO) was established by the Flemish Government by decision on October 14th, 2016. The VARIO advises the Flemish Government and the Flemish Parliament on its science, technology, innovation, industry and entrepreneurship policy. The council does this on its own initiative as well as on request. The VARIO works independently from the Flemish Government and the Flemish stakeholders in the field of science, innovation, industry and entreprise. The chairman and nine members of the VARIO take part in a personal capacity.

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