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Ethical Issues in Community and Patient Stakeholder–Engaged Health Research

Overview of attention for book
Cover of 'Ethical Issues in Community and Patient Stakeholder–Engaged Health Research'

Table of Contents

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    Book Overview
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    Chapter 1 Introduction: What We Talk About When We Talk About the Ethics of Engaging Patient and Community Stakeholders in Health Research
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    Chapter 2 Theorizing Participatory Research
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    Chapter 3 An Evolving Ethical Framework for Patient and Community-Engaged Research
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    Chapter 4 Beyond Good Intentions: Principles for Anti-racist Community-Engaged Research
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    Chapter 5 Demystifying How Academic-Community Partnerships Use Reflexivity and Praxis to Promote Participatory Research Principles of Equity and Justice
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    Chapter 6 Reflexivity: A Strategy for Ethics- and Values-Driven Community Partnerships in Mental Health
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    Chapter 7 How Do You Define Community and Why Is it Important?
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    Chapter 8 Community Researchers and Ethical Considerations: Burdens in the Field
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    Chapter 9 Community-Engaged Research with People with Developmental Disabilities: A Conversation with Community Researchers about their Ethical Inclusion
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    Chapter 10 Community Conversations about Culturally Responsive Health Research for African American Communities
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    Chapter 11 The Power of Personal Narrative: My Experience with SACHRP, the FDA, and Bioethics
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    Chapter 12 Patient Advocacy Organizations and Conflicts of Interest in Research
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    Chapter 13 Representing and Protecting: Gatekeepers in Community-Engaged Research
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    Chapter 14 Paying Research Participants and Community and Patient Research Partners: An Engaging Ethical Issue
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    Chapter 15 Rethinking Risks and Benefits in Stakeholder-Engaged Research: Lessons from HIV, Substance Use, and Sexual Health Research with Marginalized Communities
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    Chapter 16 Data Decisions and Ethics: The Case of Stakeholder-Engaged Research
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    Chapter 17 Applying the Belmont Principles to Stakeholder-Engaged Research: Adaptions and Limitations
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    Chapter 18 Stakeholder Engagement and (the Limits of) IRB Review
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    Chapter 19 Community Research Ethics Oversight: Place, Experience, and Expertise
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    Chapter 20 Introducing the Downtown Eastside Community Research Ethics Workshop: Notes on a Process for Community Ethics Review
Attention for Chapter 7: How Do You Define Community and Why Is it Important?
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Chapter title
How Do You Define Community and Why Is it Important?
Chapter number 7
Book title
Ethical Issues in Community and Patient Stakeholder–Engaged Health Research
Published in
Philosophy and Medicine, January 2023
DOI 10.1007/978-3-031-40379-8_7
Book ISBNs
978-3-03-140378-1, 978-3-03-140379-8
Authors

Tumiel-Berhalter, Laurene, Kahn, Linda

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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 1 Mendeley reader of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 1 100%

Demographic breakdown

Readers by professional status Count As %
Lecturer 1 100%
Readers by discipline Count As %
Social Sciences 1 100%

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