↓ Skip to main content

Rare Diseases in the Age of Health 2.0

Overview of attention for book
Cover of 'Rare Diseases in the Age of Health 2.0'

Table of Contents

  1. Altmetric Badge
    Book Overview
  2. Altmetric Badge
    Chapter 1 Why R&D into Rare Diseases Matter
  3. Altmetric Badge
    Chapter 2 Vignette: Autoimmune Polyendocrine Syndrome Type I (APS 1)
  4. Altmetric Badge
    Chapter 3 Rare Diseases: How Genomics has Transformed Thinking, Diagnoses and Hope for Affected Families
  5. Altmetric Badge
    Chapter 4 Vignette: A Giant of a Man: Simon Ibell (MPS II)
  6. Altmetric Badge
    Chapter 5 Innovative Funding Models for Rare Diseases
  7. Altmetric Badge
    Chapter 6 Rare Diseases: The Medical and the Disability Perspectives in the Age of 2.0
  8. Altmetric Badge
    Chapter 7 Vignette: Taking Control of Thalassemia
  9. Altmetric Badge
    Chapter 8 Industry Perspectives on Orphan Drug Development
  10. Altmetric Badge
    Chapter 9 Health 2.0: The Power of the Internet to Raise Awareness of Rare Diseases
  11. Altmetric Badge
    Chapter 10 Vignette: Living with NOMID: Michael’s Story
  12. Altmetric Badge
    Chapter 11 Health 2.0 and Information Literacy for Rare and Orphan Diseases
  13. Altmetric Badge
    Chapter 12 Social Media and Engaging with Health Providers
  14. Altmetric Badge
    Chapter 13 Vignette: Hope–Overcoming Fabry
  15. Altmetric Badge
    Chapter 14 Empowering the Rare Disease Community: Thirty Years of Progress
  16. Altmetric Badge
    Chapter 15 The Role of Social Media in Healthcare: Experiences of a Crohn’s Disease Patient
  17. Altmetric Badge
    Chapter 16 Vignette: The Blessings and Curse of Diagnosis: Myasthenia Gravis
  18. Altmetric Badge
    Chapter 17 Noah’s Hope: Family Experiences of Batten Disease
  19. Altmetric Badge
    Chapter 18 Using Technology to Share Information: Experiences of Oesophagus Atresia (OA) and Tracheaoesophageal Fistel (TOF)
  20. Altmetric Badge
    Chapter 19 Vignette: MPSIIIA (Sanfilippo)
  21. Altmetric Badge
    Chapter 20 The Empowered Patient in the Health System of the Future
  22. Altmetric Badge
    Chapter 21 Vignette: The Journey of a Lifetime
  23. Altmetric Badge
    Chapter 22 Personalized Medicine: A Cautionary Tale or Instructional Epic
  24. Altmetric Badge
    Chapter 23 Managing Communication for People with Amyotrophic Lateral Sclerosis: The Role of the Brain-Computer Interface
  25. Altmetric Badge
    Chapter 24 Vignette: The Wilderness
  26. Altmetric Badge
    Chapter 25 Opportunities and Challenges for Supporting People with Vascular Dementia Through the Use of Common Web 2.0 Services
  27. Altmetric Badge
    Chapter 26 Vignette: Recessive Dystrophic Epidermolysis Bullosa (RDEB): Sibling Experiences
  28. Altmetric Badge
    Chapter 27 Health Policies for Orphan Diseases: International Comparison of Regulatory, Reimbursement and Health Services Policies
  29. Altmetric Badge
    Chapter 28 Vignette: Route 125 (October 2009)
  30. Altmetric Badge
    Chapter 29 Rare Diseases Challenges and Opportunities
Overall attention for this book and its chapters
Altmetric Badge

About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (83rd percentile)

Mentioned by

twitter
11 X users

Citations

dimensions_citation
3 Dimensions

Readers on

mendeley
36 Mendeley
You are seeing a free-to-access but limited selection of the activity Altmetric has collected about this research output. Click here to find out more.
Title
Rare Diseases in the Age of Health 2.0
Published by
Communications in Medical and Care Compunetics, January 2014
DOI 10.1007/978-3-642-38643-5
ISBNs
978-3-64-238642-8, 978-3-64-238643-5, 978-3-66-252233-2
Editors

Rajeev K. Bali, Lodewijk Bos, Michael Christopher Gibbons, Simon Ibell

X Demographics

X Demographics

The data shown below were collected from the profiles of 11 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 36 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Netherlands 1 3%
Germany 1 3%
Unknown 34 94%

Demographic breakdown

Readers by professional status Count As %
Researcher 7 19%
Student > Master 6 17%
Other 4 11%
Student > Ph. D. Student 4 11%
Librarian 2 6%
Other 6 17%
Unknown 7 19%
Readers by discipline Count As %
Medicine and Dentistry 8 22%
Social Sciences 4 11%
Pharmacology, Toxicology and Pharmaceutical Science 3 8%
Nursing and Health Professions 3 8%
Computer Science 2 6%
Other 8 22%
Unknown 8 22%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 8. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 04 November 2020.
All research outputs
#4,861,006
of 25,992,468 outputs
Outputs from Communications in Medical and Care Compunetics
#1
of 1 outputs
Outputs of similar age
#52,539
of 321,848 outputs
Outputs of similar age from Communications in Medical and Care Compunetics
#1
of 1 outputs
Altmetric has tracked 25,992,468 research outputs across all sources so far. Compared to these this one has done well and is in the 81st percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 1 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 7.4. This one scored the same or higher as 0 of them.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 321,848 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 83% of its contemporaries.
We're also able to compare this research output to 1 others from the same source and published within six weeks on either side of this one. This one has scored higher than all of them