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The Ethics of Biomedical Big Data

Overview of attention for book
The Ethics of Biomedical Big Data
Springer International Publishing

Table of Contents

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    Book Overview
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    Chapter 1 Introduction
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    Chapter 2 “Strictly Biomedical? Sketching the Ethics of the Big Data Ecosystem in Biomedicine”
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    Chapter 3 Using Transactional Big Data for Epidemiological Surveillance: Google Flu Trends and Ethical Implications of ‘Infodemiology’
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    Chapter 4 Denmark at a Crossroad? Intensified Data Sourcing in a Research Radical Country
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    Chapter 5 A Critical Examination of Policy-Developments in Information Governance and the Biosciences
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    Chapter 6 Many Have It Wrong – Samples Do Contain Personal Data: The Data Protection Regulation as a Superior Framework to Protect Donor Interests in Biobanking and Genomic Research
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    Chapter 7 What’s Wrong with the Right to Genetic Privacy: Beyond Exceptionalism, Parochialism and Adventitious Ethics
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    Chapter 8 How Data Are Transforming the Landscape of Biomedical Ethics: The Need for ELSI Metadata on Consent
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    Chapter 9 On the Compatibility of Big Data Driven Research and Informed Consent: The Example of the Human Brain Project
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    Chapter 10 Big Data Governance: Solidarity and the Patient Voice
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    Chapter 11 Premises for Clinical Genetics Data Governance: Grappling with Diverse Value Logics
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    Chapter 12 State Responsibility and Accountability in Managing Big Data in Biobank Research: Tensions and Challenges in the Right of Access to Data
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    Chapter 13 Big Data, Small Talk: Lessons from the Ethical Practices of Interpersonal Communication for the Management of Biomedical Big Data
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    Chapter 14 Researchers’ Duty to Share Pre-publication Data: From the Prima Facie Duty to Practice
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    Chapter 15 Reporting and Transparency in Big Data: The Nexus of Ethics and Methodology
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    Chapter 16 Creating a Culture of Ethics in Biomedical Big Data: Adapting ‘Guidelines for Professional Practice’ to Promote Ethical Use and Research Practice
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    Chapter 17 The Ethics and Politics of Infrastructures: Creating the Conditions of Possibility for Big Data in Medicine
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    Chapter 18 Ethical Reuse of Data from Health Care: Data, Persons and Interests
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    Chapter 19 The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts
Attention for Chapter 14: Researchers’ Duty to Share Pre-publication Data: From the Prima Facie Duty to Practice
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Chapter title
Researchers’ Duty to Share Pre-publication Data: From the Prima Facie Duty to Practice
Chapter number 14
Book title
The Ethics of Biomedical Big Data
Published in
Law, Governance and Technology Series, August 2016
DOI 10.1007/978-3-319-33525-4_14
Book ISBNs
978-3-31-933523-0, 978-3-31-933525-4
Authors

Christoph Schickhardt Ph.D, Nelson Hosley, Eva C. Winkler M.D., Ph.D, Christoph Schickhardt, Eva C. Winkler

Editors

Brent Daniel Mittelstadt, Luciano Floridi

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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 4 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 4 100%

Demographic breakdown

Readers by professional status Count As %
Unspecified 1 25%
Student > Ph. D. Student 1 25%
Student > Bachelor 1 25%
Other 1 25%
Readers by discipline Count As %
Agricultural and Biological Sciences 2 50%
Unspecified 1 25%
Social Sciences 1 25%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 10 August 2016.
All research outputs
#17,732,227
of 25,992,468 outputs
Outputs from Law, Governance and Technology Series
#1
of 1 outputs
Outputs of similar age
#256,218
of 384,431 outputs
Outputs of similar age from Law, Governance and Technology Series
#1
of 1 outputs
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So far Altmetric has tracked 1 research outputs from this source. They receive a mean Attention Score of 1.0. This one scored the same or higher as 0 of them.
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We're also able to compare this research output to 1 others from the same source and published within six weeks on either side of this one. This one has scored higher than all of them